Innovation and Applied Research
Native BioData Consortium works to help tribes gain sovereignty over Indigenous data by partnering with research universities, governmental institutions and private companies. Genomic research uses a vast mass of health data that promises more effective treatments and cures.
Rapid Acceleration of Diagnostics Tribal Data Repository (RADx TDR): Data for Indigenous Implementations, Interventions, and Innovations (D4I)
- $9 million awarded this month to provide a safe home to Tribal COVID-19 data and help design ethical approaches to data sharing, data analysis, implementation, policy, and legal frameworks for future federally-funded Tribal data
Monitoring COVID-19 and Building Capacity with Northern Plains Tribes and the Future of Pandemics
- Building locally-ran and accessible COVID-19 testing capacity for CRST
Strengthening COVID-19 prevention strategies via wastewater surveillance in a Northern Plains Tribe
- Building local wastewater surveillance and public health monitoring capacity for CRST
Artificial Intelligence Ready and Equitable Atlas for Diabetes Insights (AI-READI) - Ethics Team
- Contributing to the oversight and development of ethical standards on data collection f0r NIH’s efforts to integrate federal biomedical research with AI (Bridge2AI)
Academic Research
Yracheta, J., Morriseau, T., Dale, K. et al. Scientists and scientific journals should adhere to ethical standards for the use and reporting of data from Indigenous people. Diabetologia67, 2404–2407 (2024). https://doi.org/10.1007/s00125-024-06236-y
Garba Ibrahim , Sterling Rogena , Plevel Rebecca , Carson William , Cordova-Marks Felina M. , Cummins Jewel , Curley Caleigh , David-Chavez Dominique , Fernandez Adam , Hiraldo Danielle , Hiratsuka Vanessa , Hudson Maui , Jäger Mary Beth , Jennings Lydia L. , Martinez Andrew , Yracheta Joseph , Garrison Nanibaa' A. , Carroll Stephanie Russo. Indigenous Peoples and research: self-determination in research governance. Frontiers in Research Metrics and Analytics, (2023). https://www.frontiersin.org/journals/research-metrics-and-analytics/articles/10.3389/frma.2023.1272318/full